A Few Good Days!

Just a little update. I have had a great three days! I felt sick on Christmas day and very dizzy from the incense in church but once I was out of there and got some air and food I felt much better! I was able to clean the entire house from ceiling to floor and still feel great!!! I have been super itchy which usually means I am pretty toxic so need to detox a bit more, but other than that it hasn't been effecting me much. I even got 11 hours of sleep one night!! I got my bicillin injection today so we will see if that effect me tomorrow but so far so good! SO nice to feel good!

A Few Good Days!

Just a little update. I have had a great three days! I felt sick on Christmas day and very dizzy from the incense in church but once I was out of there and got some air and food I felt much better! I was able to clean the entire house from ceiling to floor and still feel great!!! I got my bicillin injection today so we will see if that effect me tomorrow but so far so good! SO nice to feel good!

Swimming From Night Sweats

My night sweats have been off and on but been bad over all again. This night was particularly bad and my hands looked as if I was swimming all night long. Night sweats are an odd thing! I went on a new drug to help but had to stop because it was too intense. Hopefully I can go back on again soon! Babesia is causing me a lot of laundry! :-)

Our Story - Life, Love, Lyme, and Faith

This is really, really hard to watch and children should not watch it but, it shows the real side of lyme and what it can do to a person when they dont get the help they need. Its a long road to recovery and this young couple shows how strong they have been. Its been a long road for me and I havent been as sick as she has. She is one strong chica!

Dear Santa...Love, Me.

A fellow lymie wrote a great post. Here is the link-

http://infectiousoptimism.blogspot.com/2011/12/dear-santalove-me.html?showComment=1324482358643#c950191572919133366

Bicillin Injection #7

Had my 7th injection today. The needle went right into a vein which can be really dangerous. If the nurse were to actually inject the bicillin into the vein, it could kill me. This is why when the needle is put into the skin they aspirate the syringe to see if blood comes into it. If so they know they have hit vein and need to stop. Thankfully she is very educated and a great nurse. So, she took it out right away and had me put pressure on it while she got the blood out of the syringe and put a new needle on. Second time we were clear and good to go. So today I got poked two times and have two battle wounds but glad it wasn't worse! Onto my 8th injection on Thursday!

The Rich Man's Disease

I have heard it 100 times before. Lyme Disease is a rich man's disease, and it is true! I am so frustrated and angry with the politics of lyme. Why is it so hard for the medical field and insurance companies to except??

Well for one, it's a huge liability for doctors because there are so many treatments, long term treatments, various drugs, insurance companies coming at them left and right, uneducated cruel, hurtful people deliberately trying to shut them down , etc, etc.

Why won't insurance companies recognize it? Easy, because all of the other disease out there that could be lyme-MS, Chronic fatigue syndrome, psychological disorders, arthritis, heart problems, liver problems, chronic pain, Alzheimer...I could go on and on, the list is long-would then be the insurance company's problem and they would have to cover these expensive long term treatments that would cost millions of dollars to treat. Instead they basically say if you need more than 2 weeks of treatment then you really don't have lyme and they will not cover you.

It should not be like this! I should not have gotten to the point that I had to quit my job, we should not be loosing our house, I should not have to uproot my daughter from the only things she has known, we shouldn't have to move in with family at our age. I SHOULD NOT HAVE TO THINK ABOUT STOPPING TREATMENT!!!!! We are broke, and many people have helped us. We are to the point where I may have to cut down my treatments a lot or stop all together. We just can't pay for all of this anymore. I SHOULD NOT BE UP AT 1AM BECAUSE I CANT STOP THINKING ABOUT THIS. I WANT TO GET BETTER!!!! I want to run more than the 20 feet with my kid with out being so out of breath and feel sick. I want to have the option to have another child if I want, I want to be able to sleep all night and actually wake up refreshed, I want to be able to enjoy a party, holiday, get together with out panicking about the cost of whatever is going on. I am making great progress and my doc thinks I will see great results by this next summer. I AM SCARED. I don't want to down slide. I remember those days clearly and never want to have to call 911 again because I thought I was dying and have to take an ambulance ride to the ER. I don't want to go back. SO I SAY SCREW YOU TO THE POLITICS OF LYME DISEASE AND TO THE SELFISH UNEDUCATED JERKS THAT MAKE THIS SO HARD. YOU ARE TAKING INNOCENT LIVES AND IT IS NOT OK! WHO DO YOU SEE WHEN YOU LOOK IN THE MIRROR?