Friday, April 19, 2013

Conquering Depression

7 Steps For Conquering Depression
 
 
  • Unplug From The Noise
           Take a sabbatical from the news, facebook, Internet discussions, and any social interaction with grumpy naysayers, Debbie downers, and drama queens.
 
  • Daily Exuberant Motion
       Turn on some bouncy music and move! Dance exercise, swim, walk, play tag, chase the dog.    Break a sweat and feel your heartbeat. Let the blues roll down the drain when you rinse off.
 
  • Daily Mindful Stillness
          Spend some time paying attention to you. Sit still, breathe, and notice your body, thoughts, emotions. Work towards 20 minutes of compassionate awareness and acceptance.
 
  • Cultivate Joyous Virtues
           What if happiness isn't something you wait for, but a habit you can practice? Compassion, gratitude, peace, passion, innocence, curiosity, play, enthusiasm, and generosity.
 
  • Try A Pride Costume
           Scrub yourself up nice, and get dressed like you're proud to be you. Go out and do some work in a coffee shop or library. Walk tall, smile, maybe even flirt a bit. Shine!
 
  • Eat Like Hunter-Gatherer
          Yes: Plants, animals, water. No: Grains, sugars, chemicals. Caffeine is great rising, but remember to ease off to encourage healthy sleep.
 
  • Mitochondrial Support
          Supplement with CoQ-10, L-Carnitine, B-Vitamins, Folic Acid, and Antioxidants. Spend time in the sun for Vitamin D.
 
I saw this on Pinterest and thought it was a good list. It linked to Get Inspired Get Fit
 
 
     
 
 


Thursday, January 17, 2013

Remission



I AM IN REMISSION, yup I said it, remission!!!! I honestly never thought I would get to this place in my life. What a sweet word remission is, music to my ears and all of those fighting the Lyme battle. I want to throw a remission party, yell it from the rooftop, dance around, sing, party, do everything I couldn't do for so very long. I am very happy, but also leery. I know lyme can come back at any time and I haven't been in the clear too long. December 19th I had my PICC Line pulled out and have been in remission since then. I am currently on maintenance drugs so I am not drug free, but many good Lyme docs out there know that this is the best way to do it. You should never just stop treatment all at once. Your body has been sick for so long and on meds for so long that it would really throw it for a loop cutting things out cold turkey. So for now, I am on a couple to make sure things stay at bay for a bit. I take it everyday but everyone is different. I have a friend that is doing great and he only has to take meds one weekend a month to make sure he stays healthy. That isn't bad at all!

I have been gradually been getting better for a while but always hit road blocks and could never get over the hump. The key for me was the IV treatment via the picc line. Everyone on my medical team was amazed at how fast I was getting better on it. I hardly herxed compared to other treatments I have tried and was improving at a pretty fast pace. I only had the picc line in for a total of 4 months and it didn't take me long to feel well and could tell it was working! It is amazing to me that someone can improve so quickly when you find the correct combo for their body! Makes me wonder what would have happened if I would have done this a long time ago. 

It is fascinating to me that such a tiny tube in your vein can provide such important medications to get you better. A tube that is always in your arm, that goes all the way to your heart and stays there. Just chilling in your vein doing its job. A tube that is kind of complicated to get put in and so easy to take out. To take it out all my nurse had to do was pull it out, that's it! I couldn't even feel it and wasn't grossed out like I thought I would be. Such a tiny tube with such a big job! Boy am I thankful for that little tube! I had to keep the spot covered for 3 days so air couldn't get into my vein and then I was safe to let air on the spot and shower like normal. I kept it covered for an extra day since I was paranoid air would get into my lungs if it was exposed to air too soon. It has been very nice to shower with out having to cover part of my arm! Now you can hardly tell I had anything in my arm. There is just a small red scar that I am sure will fad more over time. 

I am living proof that long term antibiotics DO help and that many in the lyme community need that to get better. There is no easy or fast fix when it comes to such a complicated disease. It's a long, hard, hard battle. I wish all of us could get to the point of remission! Keep fighting the good fight and never give up!!!








Tuesday, October 23, 2012

Picc Line

I have't updated in a while and many things have changed! I was hitting road blocks with the oral meds so my lyme doctor and I decided it was best for me to get a picc line put in and get IV treatments. I was really nervous to get the line put in, I mean there was going to be a tube inside my arm to my heart that stayed there!! Ew! I knew I would be fine once it was in but the process of getting it in grossed me out. My hubby came with and I had two great nurses. There was a little trouble getting it in the right location but once it was in the correct spot I was good to go! Its been really great! I forget its there most of the time and once it healed I could do normal things with my arm again. My nurse said I could even lift weights if I wanted to. Note to self-get my butt in gear and start working out again ;-) I have had one blood clot in my line but it was really no big deal. My nurse came over and put meds in my line to take care of the clot and the line worked again!

I started out on one drug that was one IV a day, then I got bumped up to two IV's a day. Currently I am on two different IV drugs. One is a cyst buster that I do three days a week, twice a day. The other is the drug I started with that is four days a week, twice a day. I was warned by many that IV therapy is really rough and I will be down and out for a while, especially the cyst busters. Of course I have had bad days but its been a blessing to have this treatment. I have come a long ways in a very short period of time and I am not herxing like crazy like many people thought I would. I love this treatment, I only wish I would have done it earlier! Lets hope I keep getting better and will enter the world of remission soon! How awesome would that be! I never thought it was possible after 5 1/2 years of fighting for my health!! Check out facebook for more pictures of the picc line process.



Monday, August 20, 2012

Drugs, No Drugs, Drugs, No Drugs



Just a little update. My poor body has been a mess. I was doing great so my lyme doc wanted to take me off all drugs for a month in order to do the Borrelia Culture through Advanced Labs. It's a newer test and a lot of docs are super excited about it because it's much, much more sensitive than any other culture out there. I felt great the first 4 days off treatment and then went down hill very fast. Psychologically I was a complete mess, I was so tired, and a million other things. So after I couldn't take it any longer I called my doc back and explained. He had me go back on a much higher dose of one of my meds to try and jump start me back to feeling good. Not good. I-FELT-HORRIBLE. I needed to puke but wouldn't allow myself because I needed to keep the drugs in, which resulted in dry heaving. Needless to say I was HERXING like crazy, my body was not happy with me for cutting all drugs cold turkey and then going back on, but only one drug, and a higher dose than normal. I decided to change my schedule up and take them all at bedtime in hopes I would just herx when I was sleeping. It didn't really seem to help much. Finally two days ago I couldn't take it any longer and made the decision to go down to one pill instead of two. Yesterday I felt so much better and so far today I feel pretty good! Thank god! My doc wanted me to call after I was back on for 10 days and then we plan on trying to go off drugs again to do the lab in one month, oh joy, can you feel my excitement?! Not sure If want to deal with the off and on drug battle again. He is going to call my back and we will go from there. I am just going to enjoy feeling good again and see what the next step is we take.

Thursday, July 26, 2012

Joint pain-Lyme or Damage?



Joint pain was one of my first symptoms 5 years ago, one day I woke up in a lot of pain and my fingers frozen in the claw position. I couldn't pick my baby up out of her crib, I couldn't unscrew her bottles, it was hard to zip things, button things, snap things, etc.  It just got worse from there and my body would add more and more symptoms as time went on and on until a doc FINALLY diagnosed me with Lyme Disease along with the co-infections Babesia and Bartonella. Fast forward 5 years and 2 years of treatment and my body is in a much better place. I normally don't have joint pain anymore unless I push it. So which is it? Lyme disease or permanent damage from going so long with out being diagnosed and treated? I often wonder this. According to one of my lyme docs my Lyme and Bartonella are in remission and I just have Babesia left. This one has been the hardest on my body and hard to treat and get rid of. So when I over do it and my joints hurt, is it the babesia? Maybe my joints will always hurt and get sore when I am more active. If I do a lot of sewing or crafting, I am sore. If I walk a long ways, I am sore. If I work out, I am sore. Maybe I am just not active enough? Maybe babesia is hanging on? Or maybe that is how it will always be. Its frustrating not knowing. At least it isn't as bad as it was 5 years ago. I just hope that one day it will totally be gone and there are no lingering effects of Lyme and I will be in total remission.

Friday, July 6, 2012

Toxicity




Impending doom fills the air


The fog takes over your brain

It is thick like sludge

Your thoughts slow down

You feel stuck in between two worlds

The toxicity takes over

You can’t think

You can’t focus

You are no longer thinking like a person

You are thinking like the monster that has taken over your brain

You want out

It doesn’t matter how

You want to be alone

But know you shouldn’t be

You want to run, but the monster will follow you

You want it to end

Even if the end is truly the end

You know you need to surround yourself with those that care

You don’t want to, but force yourself to

The disease can’t win

You are stronger than that

You are strong

You will beat this


You will fight like you always fight

You are strong