Bartonella Treatment=A Lot of Die Off!!

Just a little update-I am on a higher dose of my bartonella treatment now and feeling it! I have horrendous head and neck pain, which includes-head, face, teeth, ears, neck. And upper back is very tight too. I didn't notice how tight until my chiro and massage therapist started pushing around on me. The worst is where my head connects to my neck. Horrible pain and not much has helped since Friday. I have been trying different pain meds and so far Advil seems to be the best one. I have been following doctors orders and rotating heat and ice and detoxing, still no relief. I had a short lived break from the pain when I went and got a 1/2hr massage but it was short lived and the pain came back worse. It usually kicks in full force when it's time to take another dose of my meds and they kick in. I was posting on facebook and a friend mentioned she uses icy hot a lot. I didn't even think of it, but I have a natural version of it called Biofreeze. I rolled that on my neck this morning and it helped a lot!

All the pain is herxing-so much die off at once in my body that it turns into toxicity and pain. There isn't a whole I can do other than detoxing as much as I can and trying to find what works best for the pain. It's part of treatment, not fun but I don't want to stop the treatment. I want these bugs OUT of me! I start Bicillin injections on Friday so I will keep you updated on that also!

I Am Thankful For-

Even though I have had a rough go the last few days I am still thankful for how far I have come and other things in my life. There is no doubt that the medical field has failed us lymies but I am thankful for the other advances in the medical world out there-

Today I am thankful that the Newborn Screening labs came back on my daughters 3rd day of life. She was diagnosed with MCAD, a metabolic disorder. She was dying and we didn't even know it. Without this test, she would be in the ground and not in our arms. I am SO thankful for her and advanced medical testing.

What are you thankful for today?

Lyme Disease Gives Pat Kessler A Reality Check « CBS Minnesota

Lyme Disease Gives Pat Kessler A Reality Check « CBS Minnesota

Thumbs Up!

Everyone has been asking me how I have been so thought I would post an update.

I am on 3 powerful drugs right now and started treating Bart! The first week I felt like I had morning sickness most days and then it would tend to clear up a bit after lunch. I was also soooo tired and drained. I felt like a bus ran me over and then a truck came by and did it again. This week has been so much better. Yesterday I felt good ALL DAY LONG!! Awesome!! I am getting rashes and itchy at night and had to stop a drug that was supposed to help with mood/rage and help me sleep. It did the opposite and kept me up at nigh but did a great job with the mood part of things. I can't tell if I am allergic to a new food or if the new drug is giving me rashes. Called doc and he said its a side effect of the new drug. So benadryl will be my best friend. I am also going to try and take a half a dose in the AM and the other half a dose in the PM of the pill that is supposed to control the lovely Bart rage and insomnia. Hope it helps. I know the hubby is glad I don't get rage anymore. It's a scary thing when it pops up out of no where. So, overall I am doing awesome and so happy to be feeling myself more lately! I hope it continues!!

Zoned Out and Scared!

I start my brand new treatment for Bartonella tomorrow. I haven't treated Bart at all yet so I am expecting some pretty harsh die off and herxing. Usually when I treat something I haven't yet, that's what happens. At least if it's not as bad as I am expecting, then I get a nice surprise. We are starting out pretty slow so hopefully that will help too. I am also back on some lyme treatment and Babesia treatment I had to stop for a while to start a different more powerful Babesia drug to try and hit those bugs extra hard. I am done with the course for now, so I am back on my other two drugs. I can tell it's building in my system. Today especially I feel really zoned out and like a brain fog zombie. I feel like my body is slooooowing way dooooown this morning like I am super drugged and really in a deep fog. My brain is not working the greatest today. Trying to keep up with a 4yr old should be interesting. Once I start my new drug tomorrow I will be on 3 powerful drugs and in two weeks I also start Bicillin shots. It's kind of a crazy month for treatments. Let's hope they kick some lyme butt!

What Are You Thankful For?

It's almost the month of giving thanks. It's hard to be thankful when there is so much negativity going on in my body and world right now, but I have a lot to be thankful for. I am thankful for--

• My loving husband that never stops loving me and is stronger than ever through this battle
• My silly 4 yr old that keeps me on my toes
• Food in the fridge and clothes on our backs
• Our current house and the family members house we will be moving into
• Two working cars
• Three great years running my daycare with loving children
• Family and friends that would drop everything to help me, and have
• All the awesome doctors that I see and my daughter see's
• My therapist to help me through the really rough days when I don't see the light at the end of the tunnel and has never given up on me
• Our very knowledgeable Realtor and lawyer that are helping us through this rough patch and only looking out for our own well being
• Now being able to just focus on getting healthy and taking care of my daughter with out anything holding us back

Trying to Except Things

I am sure my situation sounds like a million others out there-person get's sick, looses job, looses house, has to go on food stamps, use the food shelf and has to rely on others for her to survive. It's more common than people would like to think.

However this is not what I expected out of my adult life. We have had so many challenges in our 8 years of marriage it's amazing we are still together. It feels and has been never ending, it's so draining. I am just thankful my daughter has made it a whole year with out having to be admitted into the peds ward for the millionth time. I am glad she is at least healthy for now. We have made it through so much already that I have no doubt we will make it through this one and come out stronger in the end. But right now, it doesn't feel like that. It's hard to except all the new changes that have all happened in a very short amount of time. Yesterday was my last day doing home daycare. I had to say good bye to all my kids. They were my family and I worked hard to open my home to them and make them my family. It's upsetting to let them go and upsetting my health has caused all of this. I know it is for the better and now I can focus on my daughter and on healing but I feel lost. I am used to go, go, going. Lyme has slowed me down A LOT but now, with out working, it's going to be a bit of a shock. I have worked my whole life.

We still have a lot to do. I am working on clearing out all of my daycare items and thinning out the house so we won't have as much to move once it sells. We rented a huge dumpster to toss a ton of things. Once we move we will have more changes we will have to get used to. We won't have our own home anymore. We will be living with family and having to adjust to that. I hope all of these changes are for the better and we can all have a healthier life. Our credit will be shot for 3-5 yrs since we are selling our house short sale. My hope is that in 3 years, I will be healthy, my daughter will be happy and healthy, my husband will have 1 normal 40 hour a week job and he is healthy and that we can afford to have a nice home to ourselves! Time to start working on that goal...