Saturday, May 19, 2012

Coffee Enema Detox

Great video explaining how coffee enemas work for those that are interested in trying it. Its very good for your body


Tuesday, May 15, 2012

What I Wish I Knew Ten Years Ago



•What a deer tick looks like and how very small they are


•When a deer tick is engorged with your blood it can look as big as a wood tick


•How to properly take a tick out. Do NOT squeeze the body, use a tweezers and get the head


•You don’t have to be in the woods to get it, you can be in your own back yard or right in the city


•Not everyone gets the bulls eye rash


•If caught early and you treat right away with antibiotics it can potentially be enough to get rid of it


•If caught later, you could have years and years of treatment and the damage may be irreversible


•Doing a full body check every single night is a key factor to find any ticks either before they attach or get them out as soon as possible


•Showering after being outside lowers your risk to get any unattached ticks off of you


•Putting your clothes in the dryer after being outside can kill ticks attached to your clothing and lower your risk


•Pets can bring ticks into your house and they can drop from them onto your bed, couch etc and then attach to you


•Kids are at the highest risk


•Keeping your lawn very short and cleaning up leaves right away lowers your risk


•The Elisa test they do at a normal clinic is a horribly inaccurate test and normal MD’s are not educated like they should be about Lyme Disease and co-infections


•You need to see a Lyme Literate Doctor to get accurate information


•You should be clinically diagnosed in addition to the advanced testing, there is no test out there for lyme disease that is accurate enough to 100% go off of


•If after going to a million doctors and getting nowhere, and getting diagnosed with random things, you are still not getting better you need to see a lyme literate doctor to at least rule out lyme disease


•Lyme Disease isn’t called the great imitator for nothing. It can imitate MANY other diseases out there 


•Do your homework and fight for your own health. Only you know how you feel

Friday, May 11, 2012

Doctor Update

I went and saw my out of state doc last Friday for my in person check up! It went great, love my doc! He thinks that my Lyme and Bartonella are dormant and I just have Babesia left. How awesome is that!!!!! I have two out of the three in remission now, woohoo!! So now we are slamming Babesia even harder to try and kill it all off. I had a little drug vacation and started back today on some powerful drugs. In 3 weeks I will add more and gradually bump up to the higher dose. I am a little worried about how much herxing I will be having with such strong drugs, but I have had plenty in the past two years already. So I say bring it on! Let's kick it's butt!! Let's hope in 3 months I am in a much better place, I am making some huge strides and SO excited. Babesia has been the hardest one for us to treat so we don't know how long this process will take but at least there is a light at the end of the tunnel now. Yay for good news!

Wednesday, May 9, 2012

Two Years

Well, I made it. I have had treatment for TWO years now, wow! I honestly didn't think I would make it. The first few months were SO hard that I thought I would die in my sleep. And when I woke up in the morning, I was disappointed I actually woke up. I just wanted it to end. I have come a LONG way. Two years is a long time, but when you start feeling better it doesn't seem that long ago that I started this process. I know people that have been and are in treatment for so much longer. I am thankful that I am feeling better and can see the light at the end of the tunnel. Lyme is a life long battle for some, but for many it's just maintenance and you can still live a normal life. I am getting closer and it's a nice breath of fresh air! I will update you all on my out of state appointment in the next post!

Wednesday, May 2, 2012

Lyme Disease Awareness Month

It is May, which mean it's Lyme Disease Awareness Month!! What would you like to know about Lyme Disease??

Sunday, April 22, 2012

Chronic Illness and Suicide



This last week the lyme community lost 3 people. One of which was suicide. There are so many of us that consider suicide at some point or another on our journey with chronic pain and chronic illness. Sometimes people don't have friends or family that care, or want to help and support them. Sometimes the toxic die off and drugs over power your brain and you can't think straight and just want to die. Sometimes you become so depressed you see no other way you can go on. Sometimes the beginning of treatment is too much to take, or you have been on treatment SO long that you just can't handle the struggle anymore. Some of us loose our house, our animals, file for bankruptcy, have to live off of or with family, go on food stamps, have to use the food shelf. You just want a normal life again. I could come up with a million reasons. Fighting through all of the horrible effects can be very difficult to say the least. I think a lot of us have been at one of these points or all of them. It's hard to live in daily pain or feel sick so often. This is why we need to stick together, reach out, talk about it, speak up. One of the main reasons for my blog is to educate people and get support out there. There is a large lyme community out there. Many groups and people on facebook, many support groups to go to, many web sites to read up on, many doctors that can help you(you just need to know where to look). I am fortunate that I have a few close friends that will never give up on me or turn their back on me. I also have a very supportive family that also fall into that same category. But even with all the support in the world, you can't be helped if you don't reach out. I have experienced almost every one of those listed above. I have considered suicide, I have made a plan, I have known what I want to say in my letters to my daughter and husband (and written them)and I have spend time in the hospital because of it. Checked myself in. I have never admitted this to anyone outside my very close group. So why now? Because people need to understand that this is a very common thing in the lyme community. These thoughts and actions are something that are discussed on a common occurence in closed groups. I want people to be aware it happens. I want the newly diagnosed Lymies out there to know that it's ok to feel like that, but you need to reach out if you are going to make it. We can't keep loosing our friends to suicide. Although I totally understand where they are coming from and just wanting to be done, we need to stick together! We need each other! We can't let the bugs, the political crap, the unsupporting people, all of the uneducated medical people that said nothing was wrong with us to win! We can make it, and we will! Reaching out to someone is the first step!

Saturday, April 21, 2012

ER Visit





I recently when on a higher dose of two drugs which were causing too many side effects so I had to take a mini drug vacation. I was still herxing a lot and on day 5 of being off drugs I started having a lot of chest pain and other random stuff. Dizzy, random pain, pukey, numbness, blurry vision, head pain, etc. Really nothing out of the ordinary but was scary because of the chest pain and the location of the numbness. I wasn't sure if I should go get checked out or not. I remembered that my out of state doc has an on call doc at all times so called at 10:30pm. I actually talked to my doc and he reassured me that it was just herxing and thought the chest pain was my muscles contracting. And for whatever reason I was still herxing like crazy even after being off my meds for a while. I felt better after talking to him and went to bed. The next morning I woke up feeling great and then started to feel sick again. It was gradually getting worse and the chest pain was getting unbearable. I has numbness in my left arm, the left side of my face, and the left side of my neck. The pain was also traveling to my shoulders and my back hurt where my heart is located. I couldn't take it anymore and took myself to the ER along with my 5 yr old. They did an EKG, lab work, Xray and I was hooked up to monitors for about 6 hours. My poor kid was such a trooper! I was glad to be hooked up to monitors since I was having such bad heart pain. Everything came back normal,thankfully! The ER doc wants me to do a stress test at the clinic next week just to make sure everything is ok. I hate going in when you don't know if it's herxing or something really happening, you feel like a nerd! But I figure when it comes to your heart, you better make sure! Currently I am back on drugs and slowly building back up again. Hoping I can get back to a normal level and not herx like crazy!!!