Saturday, September 24, 2011
A lyme friend posted a posting that I think more people need to read so I am re-posting it! Click HERE to read it! A lot of us lymies feel like this. It's so hard for others to understand that even though you don't look sick, that you may feel like hell on the inside. I agree that I would rather not look sick though! It's nice to hear people say you look good even though you don't feel good. A lot of lymies get frustrated with that. Not me, bring on the compliments haha!
Friday, September 23, 2011
My treatment and improvement has been at a standstill and at a decline for a few months now. So my doc and I discussed it and decided it was best for me to fly out of state to go see one of the best lyme doc's out there. It was a lot of planning for my daughter, my daycare, and traveling, paperwork, not to mention the cost(ouch). But at this point, I don't care what I need to do, I just want to be healthy again! So my hubby and I flew out to see what we could find out!
The new lyme doc was great! He was so kind, patient and funny. He spent two hours going over everything and explaining a lot of things to us. I was glad my hubby was there to learn also. Right now I have been treating Lyme and the co-infection Babesia. He has no doubt in his mind that I also have the co-infection Bartonella. I have been wondering for a while if I also had that one. I seem to fit the profile and it would make sense if I am not getting better that there is something else in my body that needs to be treated. He also did muscle testing which was really interesting since I have never had it done before. I also thought it was a crock and my husband is pretty hard to convince of things like that being accurate. As far as how my body reacted to the testing, it seemed pretty accurate to me. It was pretty cool to try it. That test also proved that I have a large amount of bartonella in my body to attack. SO-the plan is to start 4 new drugs and start Bicillin shots also. From what I have heard they are very painful, but again, I don't care what it takes anymore! If I have to be hooked up to a million machines, take 100 pills a day, and stand on my head, then so be it! ;-) I just took my first dose of my new meds so hope I don't herx too badly. I like how my new doc phrased it-"You have 3 big bears in your body and when you go to kill 3 big bears you don't bring a BB gun, you bring out the big guns to take them down. That's what we need to do now, we need to bring out the big guns and kill those bears." That made sense to me and it is time to KILL the 3 BIG BEARS! I have had enough!