Wednesday, September 29, 2010

Drug Vacation!

Had my Lyme doc visit today. It was pretty clear that my current protocol was not working this month. I have been sick the entire month with not much relief. She decided to stop 4 of my meds and replace with 4 others. Some prescriptions, some herbs. I am physically and emotionally drained right now so I was happy to hear she wanted me to take a drug vacation! Starting today, with the exception of my morning dose I took before my appointment, I will be drug free until Monday when I start the new protocol! Yay for a break!!

Saturday, September 25, 2010

I'm scared

It's 3am and I can't sleep. I feel so sick, my chest hurts, back back feels....strange, not sure how to describe it. My body feels kind of numb, a scary numb and very nauseous. I feel like I need to go in....but for what? They won't know how to treat me, or what to treat me with. I hate this month, I just want it to be over. Usually your first month of treatment is the worst but this one sure is coming in close. It's been a whole month, stop already, I need a break, I can't take it anymore, I want out! I want normal!!! I ate a cup of fruit before bed, could that be the culprit? Sugar? Food intolerance? I don't know, all I know is I feel like hell and I want to be done.

Friday, September 17, 2010

Needing comfort

Who doesn't need comfort when they feel like hell. Especially when it's an entire month long hell. Good thing I have some willing participants, the 3 yr old and Forrest my piggie. Well the hubby of course too! He's my professional back rubber!

Wednesday, September 15, 2010

Rough month

September has been the worst month so far. I have felt horrible almost the entire month. I am guessing its from the new drops I am on, or maybe my current antibiotic isn't working anymore and I need to change it? I see my doc in 2 weeks, I am sure we will change up a few things. Usually the daycare keeps me busy enough that I don't notice feeling so sick until they are gone or at least a lesser amount and then I tend to crash on the weekends when my body has a chance to take a break. Not this month! I defiantly feel like crap during the day, at night, all the time. I am sooooo tired and drained but then I can't sleep or wake up a million times. I am nauseous most of the day each day and really have to force myself to eat and drink. Usually I have no problem eating ;-) I have thrown up once and had dry heaves one day. Saturday I was debating on going into the ER for IV fluids, I felt so sick I just couldn't force myself to drink or eat. I hadn't urinated in 12 hours and probably only had about 1/2 cup of water. I talked to a friend that is a nurse and she said try Gatorade. I had been avoiding it because there is sugar in it but its better then having to get an IV in an already dehydrated body and the IV would have sugar anyways. It seemed to help and I was able to get enough in to make it until Sunday. Also have been having other symptoms-joint pain, head aches, stomach aches, brain fog. My body needs a break!! I am taking a vacation in a week, I hope I can actually go and enjoy some time off! In the meantime I will keeping fighting these evil spirochetes!!!!

Friday, September 10, 2010

Babesiosis Symptom Checklist

Common symptoms of babesiosis include:
___Fatigue and often excessive sleepiness
___High fever at onset of illness
___Night sweats that are often drenching and profuse
___Severe muscle pains, especially the large muscles of the legs (quads, buttocks, etc.)
___Neurological symptoms often described as “dizzy, tipsy, and spaciness,” similar to a sensation of “floating” or “walking off the top of a mountain onto a cloud”
___Episodes of breathlessness, “air hunger”, and/or cough
___Decreased appetite and/or nausea
___Spleen and/or liver enlargement
___Abnormal labs (low white blood count, low platelet counts, mild elevation of liver enzymes, and elevated sed rate)
___Headaches (migraine-like, persistent, and especially involving the back of the head and upper neck areas)
___Joint pain (more common with Lyme and Bartonella)
___anxiety/panic (more common with Bartonella)
___Lymph gland swelling (more common with Bartonella and Lyme)

Very bad herx day

Please let me make it through today! Its a very bad herx day, thinking its going to be another puking day today. I feel so sick, in pain, even though I got 9 hours of sleep I feel like I got 3, and my whole torso is on fire. The pain is giving me goose bumps. I guess it was a bad idea to plan a date night with the hubby, I think its going to be a lay on the couch night praying it stops soon. Its going to be a long day

Tuesday, September 7, 2010

Meds are kicking my butt!!

Today is the first day that I have actually throw up from my meds. I have felt pretty nasty and sick before but haven't actually throw up from them. I guess the new ones are kicking my butt! My heart hurts again today so I hope that means there is a lot of die off happening and that the meds are doing what they are supposed to. I defiantly don't like the feeling of my heart hurting! But even feeling so gross I can tell I am getting better. I was still able to do a little painting yesterday when I was feeling icky. Just tired of it controlling my life and want to function a little bit more like a normal person!

Sunday, September 5, 2010

My heart hurts :-(

I started some new meds this week. My doc warned me that the drops I am starting can cause some major herxing, she wasn't kidding!! I am now treating the co-infection Babesia. I feel horrible this week and having some yucky herxing effects. I am noticing more tonight than the rest of the week. I am very air hungry, no matter how many deep breathes I take I just can't get enough air in my lungs. Wishing I had an oxygen machine right now! My heart hurts, and my chest is tight. It feels like someone is squeezing the living daylights out of my heart. My neck hurts, head hurts, and my arms are numb and tingly. Which makes it interesting typing! I have had some trouble with anxiety and panic attacks over the past year or so due to some trauma from my past that I am not willing to talk about on here. Well, looking back I've had anxiety since a little kid but the panic attacks started with in the last year or so. I always thought the tight chest and heart pain was the anxiety and panic attacks. I know sometimes it was but I am realizing how much is really lyme related. I defiantly have most of the symptom of the Babesia. Air hunger and heart pain are classic symptoms of it. I am hoping once I treat all of this crap I won't have to feel some much anxiety and can feel more free! Wouldn't that be nice and freeing!!

The hubby's food challenge

I challenge my hubby to a food challenge. We were talking about my diet and I said I don't think he could make it on my diet. Ok, well let's make it a challenge! He has to go 2 weeks on my diet-that means no grains, dairy, sugar, caffeine, or alcohol. Do you think he can do it?! I have the hardest time with grains, I love grains. He will have the hardest time with sugar!! He has made it a day now, 13 to go! At least in 2 weeks he can go back to eating like normal! It's not easy, but 2 weeks is doable!