Wednesday, May 4, 2016

Two Weeks In

I am two weeks into round two of treatments and the exhausted has hit. I was doing pretty good over all, until the last day or so. Now I'm super tired and sore. Not letting it stop me though. Last night and tonight my oldest had softball practice. So, we ate dinner fast, loaded up and off I went with the two kids and my PM infusion items. I try to sneak off to the side someplace to hook up my IV, it's kind of awkward otherwise. Once I'm hooked up I just put the IV bullet into my hoodie pocket and play with my little one while we watch practice. It's completely exhausting working, parenting and fighting a tough illness. But it has to be done, so I just power through and hope for the best.

 I do get a lot of strange looks and people staring at the IV line That's clearly hooked up to me, when I'm out and about. So far no one has asked me about it. I was at target the other day and the check out lady noticed, she then told me I should probably lift the bags with my other arm because they are very heavy. She wasn't kidding, those bad boys were loaded! I thought it was kind of her to let me know and try to help me out some, but also respect my privacy and not ask a million questions. I wouldn't mind if she did though, I just make those conversations into an educational talk to try and spread the word and hope people protect themselves better. Speaking of exhaustion, I can barely keep my eyes open, so excuse me while I go crash on my pillow! 

2 comments:

  1. Hi, I was just diagnosed with Late Stage Lyme in March of this year. It was so helpful to me to read some of your experiences. I am so sorry for all you are going through and have gone through. I don't normally comment...just wanted to say thank you for sharing. Your honesty is uplifting. Valerie

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  2. Hi, I was just diagnosed with Late Stage Lyme in March of this year. It was so helpful to me to read some of your experiences. I am so sorry for all you are going through and have gone through. I don't normally comment...just wanted to say thank you for sharing. Your honesty is uplifting. Valerie

    ReplyDelete