I have been feeling defeated lately. When I first started infusing I felt fine during the day, but nights were really hard. I was on a HIGH dose for my evening infusion. I called my LLMD to ask for zofran and then my yucky symptoms just stopped. It was very strange. Doc still wanted to cut my dose in half since it was a very large amount and also got me some anti nausea meds. I haven't had to use any yet but I am glad I have them on hand.
It seems as though the 3rd week of treatment has hit me hard and the fun and random lyme roller coaster has kicked in. I feel fine one hour and the next I am completely exhausted and herxing, and then again the next hour I am fine again. Lyme is so weird! Typically by night time and weekends I am completely fried. So exhausted its ridiculous. My daycare and my own children keep me going during the day and into the evening, but man I am pooped! Then you add in some insomnia and its a party over here!
Tonight I pushed myself way too hard to get some shopping done. I wanted to get all Easter shopping out of the way but that also meant too many stores in one night. I am exhausted, my whole entire body is humming and vibrating, I am getting shooting random pain in various areas, and feel like I have fatigues muscles.
Since my hubby works strange hours it has been hard for me to get all the errands taken care of. I am definitely going to do as much shopping as possible from the computer and having it delivered. Thankfully between amazon and a grocery delivery service here I think I can get most things I need. Also need to stop pushing myself so hard to try and keep on top of so many things. Can't be super women, need to give that cape a rest sometimes ;-) On a side note, I am thankful my 2yr old doesn't seem to really care much about me infusing and what its all about.
Hi Julie,
ReplyDeleteI have been following your blog since 2010 when I was researching my own illness. My diagnosis came in 2011 (eleven years after the tick bite). I followed your posts religiously and you taught me a lot. I was so pleased when you went into remission and the posts slowed down because it meant you were out there living life! Now to find out that you have to go back on a PICC line upsets me so. I will be thinking about you and following along once again. I have spent the last four years mostly bedridden, unable to drive, on disability, my mother is gracious enough to take care of me. I just went through a hip surgery as well. The point of this note was to ask you what state this LLMD is located in? I have primarily treated my disease with my primary care doctor and a holistic chiropractor who knows about applied kinesiology and supplements. I thought maybe if your doctor was close enough to me it might be a good idea for me to be seen by an LLMD for some extensive testing. Thank you for your reply and all of your blog posts over the years. You have no idea how much you helped me in my early years. Take care and I will be thinking of you.
~LymeLens
Thank you so much for your kind words, it means a lot! I am sorry you are struggling so much, its not fun at all. The firs time I had a picc line it was a different LLMD than the one I have now. I will send you a private message to give you more information!!
DeleteI dont see your email. Can you email me? julieslymediseasefight@gmail.com
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