Thursday, June 9, 2011

Cry out to friends and family to take notice. PLEASE!!!

A lyme friend of mine posted information on facebook that I thought was really useful and educational! I am sharing what he had to say-Thanks Josh Cutler

It's one thing to have a disease that you know is going to happen to you, you know it only has a handful of side effects. For instance cancer, you have 2 options get chemo

and get better or the cancer quickly overwelms your body and takes your life. Aids, is now a managable disease and you can live a normal life without much complication.

Diabetes which in some cases can be prevented, as long as you keep certain things in check you are good to go. I know their are several other rare disease that make life very


But let me share with my almost 1750 friends what lyme disease and what it does in full. For most patients we do not get diagnosed right away because testing is outdated,

and still using the same methods since the 1970's the CDC and IDSA openly admit that it is not accurate. So how are we left to diagnose this horrible disease? Most diagnoses are done

with some labs, but mostly a clinical diagnoses which often happens to late for many. Several months after getting bitten and contracting the lyme disease it is to late, the general

4 weeks of antibiotics is generally no longer enough and has given the lyme and it's co-infections time to spread to the brain,heart,lungs and central nervous system. At this point the

side effects of the disease and the co-infections can be long. And even in this early stage can be fatal.

Most common in people with lyme is the following:

CARDIAC Symptoms

heart arrhythmia


Mitral Valve Prolapse



Low blood pressure (to the point of constantly fainting)

High blood pressure

unable to perform light tasks and sometimes due to lack of cardiac strenth and fatigue some are stuck in bed. Sometimes for years.

BRAIN Symptoms


Panic attacks

Generalized Anxiety disorder



Brain fog



Eye very sensative to light, normally resulting in the lymie wearing sunglasses all the time.

ears sensative to sound, to the point of always wearing head phones.

Constant ear ringing

Short bouts and issues with uncontrolable rage.

Vision problems


Central Nervous System:


body twitches


Body pain ALL OVER

weird sensations all over your body


Trouble breathing.

Shortness of breath

Treatment for lyme can be compared to that of which a cancer patient goes through. The reaction to bacteria dying in our body is called the Herxheimer reaction,

The Herxheimer reaction occurs when large quantities of toxins are released into the body as bacteria (typically spirochetes) die during antibiotic treatment.

Typically the death of these bacteria and the associated release of endotoxins occurs faster than the body can remove the toxins. It is manifested by fever, chills, headache, myalgia (muscle pain), and exacerbation of skin lesions. The intensity of the reaction reflects the intensity of inflammation present.

Pretty much, all symptoms you experience on a daily basis come out 10 fold. This reaction makes it hard to do treatment cause most times it makes people sicker and puts them in the hospital. While under the care of most

hospitals. They yank them off the meds and call the perscribing Dr. a quack or a nut. This along with several natural methods have been the only way to see any remission

in lyme disease. Remission is very hard to achieve for several reasons. The videos I post below will explain that.

This list is NOT exhaustive and is generally what a person with lyme will experience on a daily basis. From my perspective this is what I deal with daily. I fight to live

and look normal and it is almost a curse cause people assume you are not really sick. It is the curse with this disease. I have no clue why I decided to go off the end

and post everything out tonight on facebook. Rough couple days? Possibly, but this is what we experience. Again, please never any pitty. We just want people to check the facts

and stand by our sides. Do you guys not see people are dying almost everyday from this disease. DO you or will you just sit by and watch it till it effects your family?

Not only do we get sick and our lives come to abrupt stops, then we have to fight with doctors,insurance companies and with all the pilling medical bills and being unable to work

as most lymies can't. We lose all we own. As if being sick was not enough. Who can afford 2-6grand a month for treatment? All we ask is support, spread the word. Take 5 min of your day

to ask someones family who is sick with lyme. HOW CAN I HELP? It doesn't have to be money. Can you write a congressman? Can you send in a story to your local newspaper? Awareness is key.

We don't want to see anymore deaths in this community..

Most of my friends I know that have had this disease, have become humbled and have a true respect for life and each breath. If you take nothing away from this, take that.

Each breath you take, each step you walk, each day you enjoy with your family and friends is a gift. Don't throw it away and don't take it for granted. I know thousands of

people that would give anything for days like that again.

I thank God for my faith, without it I have no idea how I would have made it this far. This is HONESTLY in my eyes the hardest journey a human can walk. Years and years of it.

Please help us fight. Below are some videos, please take the time to understand what this disease is, does and why we are fighting for rights. Thanks and love you all!!

Herx reaction videos:

Videos from News stations: Today show/Good morning America/Local news outlets.

Tons of more links just hit up youtube. MOST OF ALL WATCH Under our Skin. You can watch it on Youtube for 2.99. It is on demand on netflix. It is an amazing and well made

film. Here is the trailer.

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