It's one thing to have a disease that you know is going to happen to you, you know it only has a handful of side effects. For instance cancer, you have 2 options get chemo
and get better or the cancer quickly overwelms your body and takes your life. Aids, is now a managable disease and you can live a normal life without much complication.
Diabetes which in some cases can be prevented, as long as you keep certain things in check you are good to go. I know their are several other rare disease that make life very
complex.
But let me share with my almost 1750 friends what lyme disease and what it does in full. For most patients we do not get diagnosed right away because testing is outdated,
and still using the same methods since the 1970's the CDC and IDSA openly admit that it is not accurate. So how are we left to diagnose this horrible disease? Most diagnoses are done
with some labs, but mostly a clinical diagnoses which often happens to late for many. Several months after getting bitten and contracting the lyme disease it is to late, the general
4 weeks of antibiotics is generally no longer enough and has given the lyme and it's co-infections time to spread to the brain,heart,lungs and central nervous system. At this point the
side effects of the disease and the co-infections can be long. And even in this early stage can be fatal.
Most common in people with lyme is the following:
CARDIAC Symptoms
heart arrhythmia
PVC'S
Mitral Valve Prolapse
Tachacardia
Bracardia
Low blood pressure (to the point of constantly fainting)
High blood pressure
unable to perform light tasks and sometimes due to lack of cardiac strenth and fatigue some are stuck in bed. Sometimes for years.
BRAIN Symptoms
Anxiety
Panic attacks
Generalized Anxiety disorder
Deperession
OCD
Brain fog
Disrealization
Dispersonalzation
Eye very sensative to light, normally resulting in the lymie wearing sunglasses all the time.
ears sensative to sound, to the point of always wearing head phones.
Constant ear ringing
Short bouts and issues with uncontrolable rage.
Vision problems
hallucinations
Central Nervous System:
Seizures
body twitches
Fatigue
Body pain ALL OVER
weird sensations all over your body
Lungs:
Trouble breathing.
Shortness of breath
Treatment for lyme can be compared to that of which a cancer patient goes through. The reaction to bacteria dying in our body is called the Herxheimer reaction,
The Herxheimer reaction occurs when large quantities of toxins are released into the body as bacteria (typically spirochetes) die during antibiotic treatment.
Typically the death of these bacteria and the associated release of endotoxins occurs faster than the body can remove the toxins. It is manifested by fever, chills, headache, myalgia (muscle pain), and exacerbation of skin lesions. The intensity of the reaction reflects the intensity of inflammation present.
Pretty much, all symptoms you experience on a daily basis come out 10 fold. This reaction makes it hard to do treatment cause most times it makes people sicker and puts them in the hospital. While under the care of most
hospitals. They yank them off the meds and call the perscribing Dr. a quack or a nut. This along with several natural methods have been the only way to see any remission
in lyme disease. Remission is very hard to achieve for several reasons. The videos I post below will explain that.
This list is NOT exhaustive and is generally what a person with lyme will experience on a daily basis. From my perspective this is what I deal with daily. I fight to live
and look normal and it is almost a curse cause people assume you are not really sick. It is the curse with this disease. I have no clue why I decided to go off the end
and post everything out tonight on facebook. Rough couple days? Possibly, but this is what we experience. Again, please never any pitty. We just want people to check the facts
and stand by our sides. Do you guys not see people are dying almost everyday from this disease. DO you or will you just sit by and watch it till it effects your family?
Not only do we get sick and our lives come to abrupt stops, then we have to fight with doctors,insurance companies and with all the pilling medical bills and being unable to work
as most lymies can't. We lose all we own. As if being sick was not enough. Who can afford 2-6grand a month for treatment? All we ask is support, spread the word. Take 5 min of your day
to ask someones family who is sick with lyme. HOW CAN I HELP? It doesn't have to be money. Can you write a congressman? Can you send in a story to your local newspaper? Awareness is key.
We don't want to see anymore deaths in this community..
Most of my friends I know that have had this disease, have become humbled and have a true respect for life and each breath. If you take nothing away from this, take that.
Each breath you take, each step you walk, each day you enjoy with your family and friends is a gift. Don't throw it away and don't take it for granted. I know thousands of
people that would give anything for days like that again.
I thank God for my faith, without it I have no idea how I would have made it this far. This is HONESTLY in my eyes the hardest journey a human can walk. Years and years of it.
Please help us fight. Below are some videos, please take the time to understand what this disease is, does and why we are fighting for rights. Thanks and love you all!!
Herx reaction videos:
http://www.youtube.com/watch?v=dGfpUhdRtLo&feature=related
http://www.youtube.com/watch?v=YysgBDxvZ6c&feature=related
http://www.youtube.com/watch?v=Pf5E0-1xfIo&feature=related
http://www.youtube.com/watch?v=MNVjUD0iS_4&feature=related
Videos from News stations: Today show/Good morning America/Local news outlets.
http://www.youtube.com/watch?v=vkxINRCRCDM
http://www.youtube.com/watch?v=mSdP-KoaSVk&feature=related
http://www.youtube.com/watch?v=SjjuC66g9lw&feature=related
Tons of more links just hit up youtube. MOST OF ALL WATCH Under our Skin. You can watch it on Youtube for 2.99. It is on demand on netflix. It is an amazing and well made
film. Here is the trailer.
http://www.youtube.com/watch?v=sxWgS0XLVqw
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