Come follow my journey with Lyme Disease. You may just learn something!
I was the first childhood case of lymes disease in the Milwaukee Children's hospital when I was 6 years old in 1986. Back then it took over a month to get the tests results back and in the meantime I had spinal meningitis and a number of other really dangerous symptoms. They diagnosed me with a brain tumor because of all the fluid built up around my brain and actually scheduled me from a brain shunt then amazingly got the Lyme tests results back. I remember much of the experience especially the 6 spinal taps I had and the one where a poor intern poked me 12 times before he got the needle in my spine, but most of all I remember feeling really lucky because I would walk my "charlie" (the IV thing that was my friend for 3 weeks delivering the life-saving pentacillin) down to the cancer ward and spend some time with some truly sick kids, many of whom never left that place. I however went home and had stomach pain for year, ended up with a MVP (mitral valve prolapse) minor heart murmur really and was otherwise in perfect health. Until my missionary parents took me to the Philippines where I got a very agresive strain of Malaria, but thats an entirely different and much longer story. Hope you are doing well and be strong and of course always hope, especially when things seem like they will never be right again. That undying hope can truly save you.